Part-Time Development Associate

Job description
The FD/MAS Alliance is a community-based 501c3 nonprofit that serves people affected by FD/MAS through research, education, and advocacy programs.

Fibrous Dysplasia (FD) and McCune-Albright syndrome (MAS) are nonhereditary, debilitating diseases caused by an uncommon and completely random mutation of the same gene. FD is when bone is replaced by fibrous tissue, resulting in fractures, deformity, and pain. MAS is classically defined as the combination of FD, excess hormone levels, and cafe-au-lait birthmarks, but other tissues may also be abnormal. Patients’ experiences depend on when the mutation occurred during their development and how many different cell types in their bodies are affected. For this reason, diagnosis and treatment can be difficult.

We seek a passionate and social media-savvy individual to join our team as a Part-Time Development Associate. This entry-level role will work closely with our team to help grow our organization and expand our impact. This fully virtual position requires 12 - 15 hours per week and offers a competitive salary range of $20 -$22 per hour. The ideal candidate should have a strong sense of empathy and compassion, especially when working with individuals affected by disabilities and chronic pain. Knowledge of rare patient advocacy groups is a plus.

Key Responsibilities

Database Management

Maintain and update donor and supporter records using the LGL (Little Green Light) database system.

Assist in processing donations, issuing receipts, and preparing acknowledgment letters.

Fundraising Support

Assist in the coordination of fundraising campaigns, donor outreach, and follow-ups.

Help research potential funding opportunities and grants.

Program Assistance

Provide support in the planning and execution of various organizational programs.

Administrative Tasks

Serve as a notetaker for team and committee meetings, organizing and distributing meeting minutes.

Provide general administrative support to the development and program teams as needed.

Communications

Collaborate on content development for newsletters, social media, and donor communications.

Help manage donor and supporter engagement through email and other virtual platforms.

Growth and Development

Contribute ideas and insights for improving internal processes and fundraising strategies.

Take initiative in learning new skills and growing in the role. There are opportunities to advance within the organization and the potential to increase hours.

Qualifications
• Proficient in Microsoft Office, Google Suite, social media platforms, and donor management software (Little Green Light experience is a plus).
• Empathy and Compassion are at the core of our mission. We seek individuals who share our strong commitment to supporting those with disabilities and chronic pain. Your ability to communicate with sensitivity and understanding is crucial in this role.
• Attention to Detail: High organization, accuracy, and attention to detail in all tasks.
• Excellent Communication: Strong written and verbal communication skills.
• Team Player: Ability to work effectively in a collaborative virtual environment.

How to Apply

Please submit your resume and a brief cover letter to info@fibrousdysplasia.org explaining your interest in the position and how your experience aligns with our mission.